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Epidemiology / Newborn screening / Pediatrics / Health Resources and Services Administration / Genetic counseling / Medical home / National Institute of Child Health and Human Development / Health / Medicine / Medical genetics


C O L L A B O R AT O R Working Together to Enhance Genetic Service Delivery March 2015 Edition, Volume 9, Number 1 both regional and state infrastructure and engaging key stakeholders. This issue of the Collaborator
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Document Date: 2015-03-17 20:18:06


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City

Amarillo / New York / /

Company

Improving Public Health Systems / acyl-CoA / Twitter / Facebook / Newborn Screening Services / Newborn Screening Translational Network / MSGRC Achievements Submitted / HALI Project / Parentto / Heartland / SERC / Region 4 / /

Country

United States / /

Event

Employment Change / Business Partnership / /

Facility

Eunice Kennedy Shriver National Institute of Child Health / Emory University / Primary Care Institute / Children’s Hospital of Pittsburgh / Mayo Clinic / /

IndustryTerm

diagnosis protocols / web-based data collection system / http /

MedicalCondition

MCAD deficiency / disorder / metabolic disorders / genetic diseases / chronic disease / lysosomal storage diseases / PKU / inborn errors of metabolism / Lynch syndrome / disorders / severe combined immune deficiency / MS / Pompe disease / inherited metabolic disorders / disease / heritable disorders / sickle cell disease / maple syrup urine disease / /

Movie

Sun Kissed / /

NaturalFeature

Mountain States Genetics Regional Collaborative / Mountain States Genetic Regional Collaborative / /

OperatingSystem

XP / /

Organization

Hunter’s Hope Foundation / CARES Foundation / National Coordinating Center / Health Resources and Services Administration / Emory University / RC / Genetic Alliance / National Organization for Rare Disorders / GENETICS COLLABORATIVE SERC / Immune Deficiency Foundation / General Services Administration / Save Babies Through Screening Foundation / Sickle Cell Association of New Jersey / Florida NBS Lab / Human Development / CENTER FOR THE REGIONAL GENETIC SERVICE COLLABORATIVES National Coordinating Center / Center for Medical Home Improvement / Center for the Regional Genetic Service Collaboratives / Eunice Kennedy Shriver National Institute of Child Health and Human Development / Eunice Kennedy Shriver National Institute of Child Health / Children’s Hospital of Pittsburgh / Primary Care Institute / American Academy of Pediatrics / /

Person

Monica McClain / Susanna Ginsburg / Susan A. Berry / Dorey Nez / Heartland / Rani Singh / Cindy Cameron / Brad Thompson / Kristi Wees / Celia Kaye / Sue Berry / Maya Stark / Alisha Keehn / Joyce Hooker / Gina Gembel / Kathryn Hassell / Lori Wise / Adi Lavy / Sylvia Mann / Piero Rinaldo / Marilyn Brown / Rod Slaught / Kerry Silvey / Region / Janice Bach / Joe Martinec / Hans Andersson / Lisa Gorman / Yolanda Nez / Cythnia Cameron / Barbara Jackson / /

Position

Evaluation Consultant / Website Updates/Social Media National Coo / Webmaster / advocate / Director of Regional Outreach / Major / Manager / NCC / Licensed Professional Counselor / Program Manager / Principal Investigator / Co-Founder / Project Manager / Co-Director / consultant / Associate Project Director / Social Media Coordinator / Project Director / Program Evaluator / leader / Co-Principal Investigator / nurse / co-chair / /

ProgrammingLanguage

LPC / RC / /

ProvinceOrState

Missouri / Texas / New Jersey / Iowa / /

Region

New England / Midwest / /

Technology

diagnosis protocols / pdf / telemedicine / http / discussion board / /

URL

www.gemssforschools.org / http /

SocialTag