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RDCRN Contact Registry
Results: 16

#	Item
1	DENISE SHEREFF, MLIS, AHIP University of South Florida School of Information4202 E. Fowler Ave., CIS 1040 Add to Reading List Source URL: si.usf.edu Language: English - Date: 2015-09-30 14:05:00 Health Medicine National Institutes of Health Rare diseases RDCRN Contact Registry Rare Diseases Clinical Research Network Health informatics Disease registry Rheumatology Medical University of South Carolina University of South Florida College of Medicine
2	Rare Diseases Clinical Research Network (RDCRN) Publications Updated: August 1, 2016 RDCRN Data Management and Coordinating Center Publications DMCC Publications Add to Reading List Source URL: www.rarediseasesnetwork.org Language: English - Date: 2016-08-05 12:49:27 National Institutes of Health Rare diseases Health RDCRN Contact Registry Rare Diseases Clinical Research Network Draft:Alexandros Makriyannis
3	LOGO CE_VERTICAL_POSITIVE_ALL_QUADRI_11_2013 Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-12-02 03:54:06 Rare disease National Institutes of Health Orphan drug European Union .eu Genetic Alliance UK RDCRN Contact Registry Health Medicine Epidemiology
4	Introduction to Role of Advisory Panels Bryan Luce, PhD, MBA, Chief Science Officer, PCORI Rare Diseases Roundtable Objectives for the Day Add to Reading List Source URL: www.pcori.org Language: English - Date: 2014-09-10 09:50:26 Research Medicine Nursing research National Institutes of Health Rare disease Clinical trial Outcomes research RDCRN Contact Registry Epidemiology Health Clinical research
5	LOGO CE_VERTICAL_POSITIVE_ALL_QUADRI_11_2013 Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2015-01-09 05:11:11 Rare disease National Institutes of Health Orphan drug European Union .eu Genetic Alliance UK RDCRN Contact Registry Health Medicine Epidemiology
6	Rare Diseases Clinical Research Network (RDCRN) Data Management and Coordinating Center (DMCC) Principal Investigator Jeffrey P. Krischer, PhD University of South Florida Add to Reading List Source URL: www.rarediseasesnetwork.org Language: English - Date: 2013-06-18 15:26:37 Health Clinical research Rare diseases Nursing research RDCRN Contact Registry Rare Diseases Clinical Research Network Clinical trial ClinicalTrials.gov Case report form National Institutes of Health Research Clinical Data Management
7	The National Alliance for people with rare diseases & all who support them Report of Activity 1st July 2011 to 31st December 2012 Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2013-02-05 11:46:48 Rare diseases National Institutes of Health Rare Disease Day Genetic Alliance UK Disease Pharmaceutical industry RDCRN Contact Registry Health Medicine Epidemiology
8	Microsoft PowerPoint - Steve Groft Newborns and Children Adv 1.pps Add to Reading List Source URL: www.hrsa.gov Language: English - Date: 2014-12-04 01:13:21 Research Rare Diseases Clinical Research Network NIH Intramural Research Program National Institute of Diabetes and Digestive and Kidney Diseases Rare disease National Heart Lung and Blood Institute Clinical trial National Human Genome Research Institute RDCRN Contact Registry National Institutes of Health Health Medicine
9	Rare Diseases Clinical Research Network (RDCRN) Data Management and Coordinating Center (DMCC) Principal Investigator Jeffrey P. Krischer, PhD University of South Florida Add to Reading List Source URL: www.rarediseasesnetwork.org Language: English - Date: 2013-06-18 15:26:37 Health Clinical research Rare diseases Nursing research RDCRN Contact Registry Rare Diseases Clinical Research Network Clinical trial ClinicalTrials.gov Case report form National Institutes of Health Research Clinical Data Management
10	RDCRN: A Model for Collaborative Rare Diseases Research Efforts RASHMI GOPAL-SRIVASTAVA, PH.D. DIRECTOR, EXTRAMURAL RESEARCH PROGRAM OFFICE OF RARE DISEASES RESEARCH (ORDR), NCATS, NIH Add to Reading List Source URL: osp.od.nih.gov Language: English - Date: 2014-01-13 09:19:26 Nursing research Research Epidemiology Rare diseases Bethesda Maryland Rare Diseases Clinical Research Network Clinical trial RDCRN Contact Registry NIH Intramural Research Program National Institutes of Health Health Medicine